I wrote this letter this week to a friend of our family. Maybe I can talk about this now? Apparently. I want at least to help this girl before her world come crumbling down.
Hi Rebecca,
You don't know me. I'm Charlotte (Weed) Hansen. I'm a friend of the Browns, we grew up together in Pennsylvania. I remember Micah as a silly, goofy little boy with very blonde hair and very thick glasses. I'm a year younger than Haven, who I loved for her craziness. I also was Noble's girlfriend for like a week. Anyway, I digress. I love your family still, even if it's been years since I've seen them. They are still very dear to my heart.
When I heard about your tumor from my mom (who is still great friends with Jeannie), I knew I had to write to you. I don't know if you feel at a place where you want to hear from me, but you can read this email whenever you feel like having someone to relate to. My aim is not to scare you, but to give you hope and comfort.
I have been through a similar thing this year, having discovered an astrocytoma tumor (the kind that has many tentacles) in my spinal cord. Our situations are not exactly the same; I was not pregnant at the time of discovery, so I'm sure that adds a whole new level of anxiety for you. I was still breast-feeding my third child when the tumor was found in my upper spinal cord in the vertebrae just below the brain stem. It was also not fast-growing, so I had a few weeks to wean my baby and prepare myself emotionally, which was wonderful. I spent the time cramming in as much time with my family and friends as possible. I hope you are doing the same. I also received priesthood blessings which gave me a lot of comfort, and assurance that I would heal.
From the surgery, I was told that I could end up paralyzed, or that there could be permanent nerve damage. When I woke up after surgery, I couldn't walk, I couldn't move my right hand. Strangely enough, I felt calm about it. I felt that it was temporary, and it was. During the next several weeks of physical and occupational therapy, I regained enough sensation in my body to function, although there was still numbness. I felt blessed by the Lord and confident that I would continue to heal. The hardest part was the separation from my children, especially the estrangement from my baby. She was 13 months old and angry at me for leaving her for all of that time. It was really hard on me emotionally.
The major trial to my faith came after radiation treatments. Now I don't know if you'll have to go through radiation or chemo. I went through radiation because there was a small lesion connected to the tumor that was too risky to remove from surgery, as well as the doctors wanting to remove microscopic tentacles of the tumor. I felt fine for all of radiation. Afterwards, however, I started to go more numb throughout my body. The doctors said it was probably swelling of the spinal cord and put me on a steroid. I was on the steroid for 4 months. Steroids are terrible drugs. I don't know if you'll have to go on them, but if you do, be prepared for craziness. I couldn't sleep that entire time, my muscles atrophied, I was stricken with anxiety and depression. Basically all of my bodily functions became out of whack. I genuinely felt sure I was going to die. My body was also going more numb. I was so ill that my parents took my children for a month, and my husband took that month off of work to take care of me and to take me to different specialists.
Nearly a year later, after those horrific 4 months, I am still recovering. There is still something in my spinal cord, which my latest doctor believes is necrosis, which is dead cells from radiation. It appears to be slowly dissipating. I am still numb in many places, but I have been blessed to function to take care of my children again. During that time of high anxiety, I really turned to the Lord. Really, all that gave me comfort was reading the scriptures, praying, and getting priesthood blessings (every night). I look back and see the extremity of my behavior, but I know that the hand of the Lord helped me through this difficult time, and that He is still helping me.
This trial is a lesson in patience and faith. My nerves may not heal completely, but I have to count my blessings, daily. I am so grateful to be alive and that I can take care of my kids. The Lord helps me to have patience with the physical problems I face from the surgery. I believe that the Lord helped me discover the tumor before it was debilitating so that I can fulfill my purposes of raising my children and serving others. I really believe this; through this trial, I know that these are the things I need to do with my life. I feel like I'm living my life with more meaning because I know my purposes; I have a testimony of them. I will do all I can, daily, to be the best I can.
I don't know if you've read this story before, but I read it a few months ago while preparing a lesson for YW. It's from a talk by Elder Ballard, about Lucy Mack Smith:
Lucy prepared herself early in her marriage to raise a prophet. On one occasion she became seriously ill, and the doctors said she would die. Lucy records that she “made a solemn covenant with God that if He would let me live I would endeavor to serve him according to the best of my abilities.” After a voice assured her that she would live, she told her mother, “the Lord will let me live, if I am faithful to the promise which I made to him, to be a comfort to my mother, my husband, and my children.” (Lucy Mack Smith, History of Joseph Smith, by His Mother, Lucy Mack Smith, ed. Preston Nibley, Salt Lake City: Bookcraft, 1979, pp. 34.)
This life is so short and precious. We could die at any time from any number of things. Having a tumor doesn't change that. However, the Lord will do what is best for us and for our families. The Savior's mission is to bless us. I don't know what the outcome will be for you, Rebecca. Heck, I don't know what the outcome will be for me. All we can do is live the best we can, today, everyday. And trust that the Lord will help us and our families with whatever may come. Don't be afraid of asking others for help, you will need it. People lived with me for 3 months after the surgery. Also, don't be afraid of getting psychological help. I saw a psychologist who specialized in cancer patients (who happened to be Mormon...huge blessing), and she really helped me with letting go of my anxieties.
I want you to know that I'm praying for you, and I am so sorry this is happening. Take care of yourself first, and let others temporarily take care of your babies. You will have a chance to take care of them again, I promise.